AJ updates

We went to Children's today to see Dr. Badar in the GI unit. They called us late last night to get us in as they had a cancellation. Even though we were set to go on Monday, I figured I would go in early.

The usual questions, slightly different outcome. Remember, he eats around 950 calories a day, which is supposed to be normal for his size. Even though the following is diet related and we have been through some things with his diet, we are still going to go with the flow anyway.

Here is our "To Do" list before November 23rd, our next appointment:

-He is on an antihistimine that increases appitites. Two weeks on, one week off until we see the doctor again.
-Set up an appointment at Children's in DC for a Urine, Blood, Stool, and Sweat test, get the results from an RN or send an email to the doctor to request that he call us with the results
-Set up an appointment with Children's in DC's nutritionist, Jessica, to discuss his diet.
-Set up an appointment with Children's in DC's "Feeding Team". A team of 5 doctors that evaluate how to get children to eat more. There is a 6 month waiting list for this team, but we are going to get on it anyway and cancel if we don't need them anymore.
-Do yet again another food log.

So..if there is something obvious from the tests, we will address those issues. If there isn't, but he is gaining weight due to the other things we are doing, we will just leave him alone, continue what we were doing and monitor him closely.

But, if he isn't gaining weight still, we have to do an endoscopy. If nothing comes from that, we are going to have to do a feeding tube until he is 'beefed up' in the doctor's words. I hope it doesn't come to that, so I'm more determined then EVER to get this kid to eat more and PRAY that it doesn't come to that. Regardless, God has a plan and we will get through anything thrown our way.

On a more positive note--AJ started combining two words together the other day. He said "Big Ball" and "It's Good". So smart!

We are off to the funeral tomorrow. I promise, though, when I get back I will update with some pictures! My new camera has taken some really great photos of AJ, but I have to figure out how to get them from my camera to my computer.